Fragile X Syndrome
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» Carolina Fragile X Project 
A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them. » Conquer Fragile X, Inc.
Creating a virtual research center in Israel to find a cure. » FRAXA Research Foundation Home Page
Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's. » Fragile X Association of Australia
Information on this disease, medical aspects, education, references, contacts and what's new in Australia » Fragile X Association of Southern California
Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation. » Fragile X Research Foundation of Canada
Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join. » Fragile X Syndrome
Single page on recognition of the condition in young children. » Fragile X Syndrome - Diagnostic and Carrier Testing
A Policy Statement from the American College of Medical Genetics. » Living with Fragile X
One family's account of raising 3 children with Fragile X. » Maryland Fragile X Resource Group
A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources. » Online Support Group
Support group for Family's who are dealing with Fragile X Syndrome. » Pediatric Oncal
Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations. » The National Fragile X Foundation
Features information about the disease, its treatment, and inheritance. |
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